Arch Lab recently contributed to a study titled “Self-reported quality of life and degree of youth-parent agreement: A long-term follow-up of childhood-onset epilepsy”. The data used came from the Health-Related Quality of Life in Children with Epilepsy Study, a 10-year longitudinal study which included children aged 4-12 years old with a new epilepsy diagnosis.
While individual differences were present, at the group level youth reported stable quality of life over time. Further, seizure control, anxiety/depression, and family environment had an impact on participants’ long-term quality of life. Additionally, similar parent reports at the group level were observed.