The Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) is an epilepsy-specific, parent-reported measure of health-related quality of life of children with epilepsy. Details of the QOLCE-55’s development are described in a 2015 paper by Goodwin et al. The QOLCE-55 is available at no cost for investigators and clinicians interested in using it in their research or clinical programs.
Individuals using the QOLCE-55 should reference the following citations:
Goodwin SW, Lambrinos AI, Ferro MA, Sabaz M, Speechley KN. Development and assessment of a shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55). Epilepsia 2015;56:864-72.
Ferro MA, Goodwin SW, Sabaz M, Speechley KN. Measurement Equivalence of the newly developed Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55). Epilepsia 2016;57(3):427-35.
The QOLCE-55 and user information (i.e., scoring) is available here.
Comments(2)
New ARCH Research | ARCH Lab says:
January 15, 2016 at 7:54 pm[…] The QOLCE-55 is available for free download here. […]
New ARCH Lab Research | ARCH Lab says:
February 28, 2017 at 3:47 pm[…] A paper by Conway et al. entitled, “Validating the shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) in a sample of children with drug-resistant epilepsy” was recently published in Epilepsia. The findings extend the robust psychometric profile of the QOLCE-55 in children with epilepsy, including those with severe, drug-resistant epilepsy. The QOLCE-55 is available at no cost for researchers and clinicians and can be downloaded here. […]