The Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) is an epilepsy-specific, parent-reported measure of health-related quality of life of children with epilepsy. Details of the QOLCE-55’s development are described in a 2015 paper by Goodwin et al. The QOLCE-55 is available at no cost for investigators and clinicians interested in using it in their research or clinical programs.
Individuals using the QOLCE-55 should reference the following citations:
Goodwin SW, Lambrinos AI, Ferro MA, Sabaz M, Speechley KN. Development and assessment of a shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55). Epilepsia 2015;56:864-72.
Ferro MA, Goodwin SW, Sabaz M, Speechley KN. Measurement Equivalence of the newly developed Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55). Epilepsia 2016;57(3):427-35.
The QOLCE-55 and user information (i.e., scoring) is available here.
